Well since it always seems like I am bitching and complaining I thought I would give you all a positive update. I think the no caffeine is doing the trick. As I divulge to Gary, I had quite a habit. I would drink 1-2 (closer to 2) pots (yes pots) of coffee a day and usually a 32oz iced tea. That was a typical day give or take, not so much on my days off. I drank coffee pretty much all day. Well I quite cold turkey, and I have to say it has been easier than I anticipated. I have about a half a pot of decaf coffee now, water, and maybe an occasional pop (3 a week maybe). I did not experience withdrawals like I thought I might. Instead I have felt vastly better. I am sure I am more hydrated than I was (even though I still drank min of 32 oz of water). I am amazed because my blood pressure was on the lower side of normal even with the caffeine intake. But now that I am off it didn’t crash either. All and all the symptoms of head pressure are now greatly reduced and most of the time nonexistent.
I was/am having trouble with my shunt tubing which prompted a call to the doc. In that call I reported the findings of my no-caffeine experiment. I asked her if this could have been the cause all along and she said likely not the cause but she said it likely was contributing since I have had the results I have had. The reason for the call as previously mentioned was my tube was coiled up on my liver. This was very painful. But the doc did come through in having me sleep on my left side so the liver would fall away from my diaphragm. This and a healthy dose of Tylenol seems to have allowed the tube to move off my liver. I am feeling much better that way also. I have some minor residual pain that is likely just remaining inflammation.
The long and short of it is, I am for now, feeling much much better. Not 100% but way better than I was a week ago., Oh and the results of my second opinion from the Seattle Neuroscience Institute are in. Not sure how I feel about it. Basically confirmed that my doc is treating as well as I should be. The felt she was doing all she could and recommended no further treatment. Agreed with my doc that the tubing should remain on the right side and that moving it to the left would be of little use. I don’t like that answer after reading what I have read about similar cases where they have moved it alleviating the coiling on the liver. At any rate it is nice to have confirmation but no the answer I wanted to hear.