Large Scale Central

Our Devon Sinsley needs your prayers.

General Discussion
#521

Steve Featherkile said:

Devon Sinsley said:

Guys thanks for all the concern and well wishes. This is an interesting process if nothing else. I have never before had any real serious medical issues. Just a bump or scrap here and there. Heck I have never even broken a bone other than fingers and toes. So learning to live with chronic pain and other physical issues has been an adjustment to say the least. But it is not in anyway all doom and gloom. It really is becoming an adjustment. I am learning how to get back to life while managing the symptoms. This isn’t by any means the worst thing a guy could have happen to them. I know I will be okay, whatever direction this goes. So I am not nearly as defeated as I was last summer. I am doing better.

Does this mean that you’re going to stop Devoning, and finally get back to work on your railroad? (https://largescalecentral.com/externals/tinymce/plugins/emoticons/img/smiley-tongue-out.gif)(https://largescalecentral.com/externals/tinymce/plugins/emoticons/img/smiley-innocent.gif)(https://largescalecentral.com/externals/tinymce/plugins/emoticons/img/smiley-undecided.gif)

Very funny! Ha ha ha! The only thing that gets this boy going is a Challenge!

#522

Steve Featherkile said:

Devon Sinsley said:

Guys thanks for all the concern and well wishes. This is an interesting process if nothing else. I have never before had any real serious medical issues. Just a bump or scrap here and there. Heck I have never even broken a bone other than fingers and toes. So learning to live with chronic pain and other physical issues has been an adjustment to say the least. But it is not in anyway all doom and gloom. It really is becoming an adjustment. I am learning how to get back to life while managing the symptoms. This isn’t by any means the worst thing a guy could have happen to them. I know I will be okay, whatever direction this goes. So I am not nearly as defeated as I was last summer. I am doing better.

Does this mean that you’re going to stop Devoning, and finally get back to work on your railroad? (https://largescalecentral.com/externals/tinymce/plugins/emoticons/img/smiley-tongue-out.gif)(https://largescalecentral.com/externals/tinymce/plugins/emoticons/img/smiley-innocent.gif)(https://largescalecentral.com/externals/tinymce/plugins/emoticons/img/smiley-undecided.gif)

No

#523

Ya know, ya could make that song lyric work, “I’ve been Dev’ning on the railroad, all the live long day …”

#524

Devon Sinsley said:

Steve Featherkile said:

Devon Sinsley said:

Guys thanks for all the concern and well wishes. This is an interesting process if nothing else. I have never before had any real serious medical issues. Just a bump or scrap here and there. Heck I have never even broken a bone other than fingers and toes. So learning to live with chronic pain and other physical issues has been an adjustment to say the least. But it is not in anyway all doom and gloom. It really is becoming an adjustment. I am learning how to get back to life while managing the symptoms. This isn’t by any means the worst thing a guy could have happen to them. I know I will be okay, whatever direction this goes. So I am not nearly as defeated as I was last summer. I am doing better.

Does this mean that you’re going to stop Devoning, and finally get back to work on your railroad? (https://largescalecentral.com/externals/tinymce/plugins/emoticons/img/smiley-tongue-out.gif)(https://largescalecentral.com/externals/tinymce/plugins/emoticons/img/smiley-innocent.gif)(https://largescalecentral.com/externals/tinymce/plugins/emoticons/img/smiley-undecided.gif)

No

Well, that settles that then.

The crew here on the P&CS was going to hold a celebration in honor of your golden spike ceremony, if you ever get that far, but after surveying the past winter’s damage to the P&CS, it will be all we can do to be operating by our scheduled opening day.

#525

Well the saga continues. I think I will be seeking a second neurosurgeon opinion. I like my doc and think she has done what she can but this last consult left me a little disheartened. After my last eye doc visit my vision is still headed south. At this neurosurgeon appointment she said the shunt is working as well as can be expected given the nature of my condition and doesn’t believe a revision of that shunt or a new one placed in my spine would give me any better results. This one is filling and dumping but there just isn’t a big enough void in the brain to draw the fluid from enough to totally relieve the pressure. Basically the long and short of it in her opinion is that this is my new normal. And to save my vision I will need a surgery called Optic Nerve Fenestration where they cut slits in the optic nerve sheath and directly relieve the pressure on the nerve. Saves the eyes but I have the other associated symptoms and have to deal with it. And there is no guarantee that the fenestration surgery will have the intended effect. I am not a happy camper. At 47 I don’t like the prospect of another 30-40 years of headaches, ear aches, and going blind. So I will be looking for options or at the very least confirmation.

#526

Here’s to the hope of finding better potentials.

#527

Wow! I wholeheartedly support your second opinion idea. I have done it twice over the past ten years and on both occasions I got a different opinion and a far superior ultimate outcome. And even if they come to the same conclusions as your current, that will at least bring you some piece of mind.

Of of course there is an upside to all this. When you do something dumb and someone says, “You must have a hole in your head you can say, “Well, maybe, but not a very big one!” That’ll confound them to no end!

Hang in there, my friend …

#528

Can’t have too many opinions.

I’ve been trying to get one for a non cancer illness, thought my new GP would make a decent referral… swallowing pride, I described my malady in detail and this new Doc asked me one question; “Why are you here?”

It was then I saw I was in a Cancer and Gyn clinic!

We both agreed I need a surgeon and I wouldn’t be returning … heck even a sturgeon would be better!(https://www.largescalecentral.com/externals/tinymce/plugins/emoticons/img/smiley-yell.gif)

Smile it could be worse.

#529

Yes John it could be worse. And I am glad I don’t have the worse things. This is just frustrating to beat heck. I am not dying. And for that I am thankful. Now as for the the “hole in the head” comment one of my favorite sayings was “I need that like I need a hole in the head” well that has a whole new meaning now. Means I need it pretty damn bad.

#530

Uh oh! Think that’s how you got it???

I’d hate being blind, a week was enough, but the truth is I feel better when I can make another smile.

#531

Devon, my thoughts and prayers are with you. It’s hard for me to fathom what you’re going through… But seeing your persistent fortitude and patience and trust, I think you’re a true inspiration for those enduring such great difficulties and questions.

I hope this doesn’t sound trite, but all God’s blessings my friend! You’ll pull through!!

Cliff

#532

Hang in there bro …you could just pollute your body with naturally healing products like I do. My personal choices are barley,hops,wheat,water,tobacco and hemp…all natural healing products from the earth. Think of your RR projects as a mustard seed.

Book of Rooster 69:69-69 3/3

#533

Damn, Devon. You just can’t catch a break buddy. I’m so sorry to hear about the setback and hope its only temporary. I too agree on the second opinion. Heck, if need be, get 3 or 4 more opinions. Ya never know, it might be that 4th one that has the answers. In the meantime, you will be in our thoughts and prayers. And as the great Jim Valvano said, “Don’t give up, don’t ever give up”.

#534

Hi Devon:

We miss you at the Club. Good to have seen you at last month’s train show though. Sure wish you the best of everything on this. Have paid a bit of attention to your vision comments. Over the past 2 to 3 years as I developed pressure problems with my own eyes, I stumbled across a vision email list. It is billed as for glaucoma but I found some useful comments over time. Problem with it is it is extremely technical and somewhat populated by professional folks, a few even eye doctors, (I think). Since then I got cataract surgery, new lens and stents in my eyes. Stents fixed pressure problem. Here is the link to that site: http://www.fiteyes.com/

Please be aware those folks are overwhelming. I get their email mailings and skip over 90% of it. Half of it I can’t even understand. But on the slim hope of throwing every fringe idea your way, I thought I’d mention them.

We all think of you often; probably accounts for those subtle ground tremors you feel…

Dennis Odessa/Ritzville

#535

" Rooster " said:

Hang in there bro …you could just pollute your body with naturally healing products like I do. My personal choices are barley,hops,wheat,water,tobacco and hemp…all natural healing products from the earth. Think of your RR projects as a mustard seed.

Book of Rooster 69:69-69 3/3

Hey, wise guy, an occasional twenty-dollar cigar never hurt anyone. A twenty-dollar you-know-what never hurt anyone, either, but I can’t say it because Devon has a masters in divinity and this is a family site.

edit: Two years later I’m still ticked off at those jackass doctors for making me quit smoking a pipe, but, Devon, if you ever want to take up puffing away on a cool Sherlock Holmes meerschaum, let me know and I’ll send you one of my old ones.

#536

Hang in there RevDev, things just HAVE to get better for you! You are in my thoughts daily buddy! (https://largescalecentral.com/externals/tinymce/plugins/emoticons/img/smiley-cool.gif)

#537

Thanks again all Dennis i will check that out especially facing a major eye surgery. Any ideas at this point I am open for.

#538

Devon I am sorry to hear things are so frustrating. It is my medical opinion you need a little laugh…

“Devon Sinsley said: This one is filling and dumping but there just isn’t a big enough void in the brain to draw the fluid from enough to totally relieve the pressure.”

Two words for you Devon… Hydraulic Fracturing.

Now I know this is geological technology and will have to be scaled down to work on your nugget. Fortunately with over 20 years experience in explosives I know the exact amount of HE to pack in your ears to crack your skull without making your nose bleed. Now even though I stayed in a Holiday Inn last night and am confident I can pull this off I do not expect you to be the crash test dummy for this alternative medicine. I am therefore going to test it on Rooster first. I think it will look something like this…

And I believe there is one other benefit to be had as well. All your friends are gonna want to push that plunger so I think a raffle would be in order. You could raise enough money for a new engine. After all who wouldn’t pay $1 for a chance to blow up Devon’s head?

So there is your third opinion. Let me know when you are ready to get crackin!!!

#539

Fracing could work, lol

#540

So sorry you’re going through all this, Devon.