Well folks, today is T+29 and counting. It has been 29 days since I had the stem cell transplant. I am out of the hospital now and back home. Yesterday I had a follow-up visit with the doctors and have been released from the University of Oklahoma Medical Center transplant team back to my original oncologist at St. Anthony hospital in Oklahoma City.
I lost all my hair while in the hospital – not that I had that much to start with. I also lost my full beard. This is the first time since 1977 I have been without it. Hopefully it will grow back. I also lost a lot of weight. I was about 210 when this thing started; I was down to 158 on day T+15 (the day I got out of the hospital.) I was up to 164 yesterday, so it looks like I’m on the right track.
I will be on maintenance for the next two years, but I only need to get a light chemo infusion every two weeks. Everything else is just pills and labs. I still need to wear a mask when I’m out since I have little if any immunity. I am scheduled for all my childhood immunizations in October.
It’s going to take a while to regain my strength and stamina, but each day seems a bit better. I want to thank everyone who has been following along this adventure with me … especially for your prayers and words of encouragement. I know I couldn’t have done it on my own. Special thanks to my wife, Mary, who has been my real pillar of strength and who kept me pointed in the right direction during the really tough times.
I haven’t had a chance to run any trains yet, but have spent some time walking around the yard and inspecting the ROW. I need to do some ballasting and weeding, but am hoping to get the layout back into action soon. Also, I still have the ride on the C&TSRR scheduled for June 12th to renew the enthusiasm. I have reserved the entire parlor car for my kids and grandkids. After that, we’ll see how I continue to progress. We are tentatively planning on doing the Mass trip again since Mary has family all over the Boston area. And the St. Louis Area Narrow Gauge meet in October. And Andy’s in either Sep or Oct. I was really sorry to miss out in the 2nd annual Keystone KOPs, but there is always next year to look forward to.
Bob