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  • Topic: Health Update for Bob Hyman

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    • February 12, 2018 7:34 PM EST
      • Choctaw, Oklahoma
         
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      Health Update for Bob Hyman

      To all my friends here on the forum:  Thanks for the good words and requests on my behalf to the big Trainmaster upstairs.

       

      It’s been a while since I told everyone the initial diagnosis on my Multiple myeloma and I have some good news to report. For those not familiar with the disease, MM is a cancer that affects a type of white blood cell called a plasma cell. Plasma cells produce antibodies to help fight infection and disease. In the disease, cancerous plasma cells (myeloma cells) are found in the bone marrow, the spongy tissue inside bones that manufactures blood cells.

       

      When I was first diagnosed in late November, they did a bone marrow biopsy and found that 80% of my bone marrow was contaminated with the cancer. I have completed three rigorous chemo cycles thus far, and just began cycle four this morning. Each chemo cycle lasts fifteen days and then they give me ten days off between cycles to let my body recuperate a bit.

       

      They performed another bone marrow biopsy last week at the end of cycle three. When I saw the doctors this morning, they told me the test results were zero percent. That means there was no detectable cancer in my bone marrow. They want me to complete cycle four just as an added precaution. That will run until the end of the month.

       

      In March they will begin harvesting my stem cells at the Oklahoma Blood Institute. That is a fairly involved process. They will hook me up to a machine for a few days and pump my blood through a device that will pull out the good stem cells and return everything else back into my system. After they get enough stem cells for a couple of transplants, they will freeze them. They’re good for up to ten years.

       

      At that point they will give me a thorough heavy chemo / radiation treatment that will basically kill everything in my bone marrow. Then they will thaw out some of my saved stem cells and put them back into me. I will be in the hospital for about four weeks during and following the transplant process. The last three weeks will basically be in an isolation environment, since I will have zero immunity to anything until my stem cells start producing antibodies. I will even have to re-take all of my baby immunizations.

       

      They tell me that it might take six to twelve months to regain my strength and get back to a normal schedule, but I’m optimistic that I can reduce that time. Besides. I have the entire Parlor car reserved on the C&TSR in Chama, NM for the 1st annual Bob Hyman family reunion on June 12th.  I may not be strong enough to attend the RGS OPs session at Ken's in April, but I'll sure try.  And I might even manage to have my layout open for visitors this summer!

       

      It’s kind of ironic. I started doing things on my bucket list when I thought I might not be around much longer – I bought a new pick-up truck, expanded the patio, put in a fancy spa, built a cedar pergola, and did a few other things – and now they’re taking away my bucket. Don’t get me wrong … I’m not complaining. It’s much better this way. 

       

      Bob

      This post was edited by Bob Hyman at February 12, 2018 10:12 PM EST
    • February 12, 2018 7:52 PM EST
      • Deer Park, Washington
         
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      Wow!  I hope things go well for you, Bob.

      ____________________________________

      Not only does my mind wander, sometimes it walks off completely.

       

      Some people try to turn back their odometers.  Not me.  I want people to know why I look this way.  I've traveled a long way, and some of the roads weren't paved.  Will Rogers.

    • February 12, 2018 9:19 PM EST
      • Waverly, Alabama
         
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      Glad to hear you got some good news.  I know you still have a long hard path to complete recovery but it sounds like you are ready to climb that mountain.  You and your family will be in our thoughts and prayers.

      ____________________________________

       

    • February 12, 2018 9:39 PM EST
      • Blairstown, NJ
         
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      Feel better Bob, hope you get back on track.

    • February 12, 2018 9:56 PM EST
      • Chelmsford, MA
         
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      Bob

       

      Take care of yourself and hopefully it will all work out well.

       

      Hope to see you back out east when you have fuly recovered.

       

      Stan

    • February 12, 2018 10:04 PM EST
      • Vail, Az
         
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      A big  Atta Boy on your progress!

      They hit me with full doses of Chemo and radiation too, though not to your extreme.

      I'm tucking you in behind my buddy Devon for prayers.

      I love that Parlor car, did you also get access to the gon? I had 15 of my closest family on my 65thBD trip, spent more time in the gon than cooped up inside with my obnoxious brother .

      ____________________________________

      John

       

      The older I get, the less I know, please don't make me prove it.

       

       

    • February 12, 2018 10:13 PM EST
      • Ottawa/Nepean, Ontario, Canada
         
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      Atta Boy...

        Fr.Fred

    • February 12, 2018 10:26 PM EST
      • Denver, Colorado
         
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         I just twice read through your description of your treatment. It sounds harrowing and I don't know how you got through all that...you must be one tough son-of-a-bitch. Good luck with recovery and your plans. My guess is you can do just about anything!

       

      ____________________________________

    • February 12, 2018 10:28 PM EST
      • Saint Johns, Florida
         
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      Huzzah! Good news.

      ____________________________________

       

       

    • February 13, 2018 1:52 AM EST

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      Wow, that sounds like a tough regimen but also seems very promising! Hang in there!

    • February 13, 2018 2:02 AM EST
      • Visalia, California
         
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      I truly believe attitude is a large factor in these things and you sir have that I won't quit attitude! Wishing for nothing but good news to come for you!

      Steve

    • February 13, 2018 3:29 AM EST
      • West Grove, Pennsylvania
         
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      Get well, my friend. 

      ____________________________________

      "Nothing in the world is more dangerous than sincere ignorance and conscientious stupidity." --Martin Luther King Jr

    • February 13, 2018 7:06 AM EST
      • Southern Illinois
         
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      All the best, Bob!  Buckets are way over rated, try barrels.

    • February 13, 2018 9:06 AM EST
      • Marysville, Kansas
         
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      Hoping things go well and you get better Bob.

       

      Chris

    • February 13, 2018 10:11 AM EST
      • Nashville, IL
         
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      Appreciate the update...   Hope all goes well, and health stays on the up & up...

    • February 13, 2018 7:30 PM EST
      • Shawn carries, A Purse 02B12,
         
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      Ric Golding said:

      All the best, Bob!  Buckets are way over rated, try barrels.

      I agree .....Barrels are the way to do it  !

    • February 14, 2018 6:39 PM EST
      • Pittsburgh, Pennsylvania
         
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      Whiskey comes in barrels, so yea, I prefer barrels.

      ____________________________________

      Shannon car Shops
      Home of the infamous leg lamp

      I.A.R.R.R. Member #12

      and King Butt Modeler

    • February 14, 2018 8:22 PM EST
      • Candlewood Valley, Connecticut
         
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      Andy Clarke said:

      Appreciate the update...   Hope all goes well, and health stays on the up & up...

      Bob - I can't say it any better than Andy has.  I hope you are well enough to come out East again this summer, but if you are not we will all understand and miss you.

      ____________________________________

      www.cvsry.com www.cvsry.com

    • February 15, 2018 9:22 AM EST
      • Shut up Rooster
         
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      Wow that's great news Bob.  Hope all goes well and thanks for the update. 

    • February 15, 2018 4:21 PM EST
      • Prescott Valley, AZ
         
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      That's wonderful news, Bob.  We've using the telegraph key to the Trainmaster on your behalf...   Sure glad the wires weren't down and He's listening at the other end..  

      ____________________________________

       

      In May 2015, the PCSRR in Dewey, AZ became a Fallen Flag

      But, we're still quite active in the Model Railroading Community

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