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    • September 22, 2017 3:57 AM EDT
    • II am not sure whether I have made a comment in this thread Devon, however, every time I look at LSC ( a couple of times a day at least) I see this thread and my thoughts and prayers are for you.  You seem to be getting some good treatment, hopefully you will soon be free of some of the unpleasant effects,

    • September 22, 2017 2:30 AM EDT
    • Devon Sinsley said:

      Going in tomorrow for a large volume lumbar puncture (spinal tap). They are going to remove 15cc of spinal fluid to see if that will reduce the pressure in my head. This is a pretty routine treatment for my condition. If all goes well it should give me a few months relief of my symptoms. It is not a cure but its the most likely effective treatment at this point. We will probably then try a new medication that will keep me from producing to much again. But thats down the road. For now I just want so symptom relief. 

       

      Devon,

      I have avoided comment on your problem because everyone can be treated differently. Also I wasn't going to "diagnose" (I'm not a doctor :)) what I felt the problem was. But after seeing your post tonight, I went through the exact procedure in late 2010 and early 2011. In my case, I was having increasing problems with my balance and then as it became more severe, I had difficulty walking and climbing stairs. On top of these symptoms, I was having more and more frequent headaches. First I saw a neurologist. Then I had a brain scan. The problem was found immediately. Was a build-up of fluid around one section of my brain. After some additional tests, I was referred to a neuro-surgeon at UCLA/Ronald Reagan Hospital. More tests and additional scans. In January 2011, I was admitted to RR Hospital for a 4-day test consisting of a "tap" inserted into my lower spine. Also in the tap was a valve where technicians could control the amount of fluid removed. I had this tap in my spine for four days! My surgeon set up the amount of fluid drained to 10cc every hour for the entire four days. Within the first TWO hours (20cc removed), my headache disappeared and my balance returned. I could walk up and down stairs without using hand rails and could balance on one foot. I could bend over and touch my toes and not lose my balance. I was 67 years old at that time and had the same balance as a twenty year old! They continued the draining procedure for the next four days and noted any increase or decrease in my balance. Also noted any dizzyness or headaches. They even checked for any memory problems or cognition during the procedure.

      At the end of the four days, the tap was removed and I was sent home to see how long it took for my balance problem to return. This was all part of the test. My balance symptoms returned with about a week and a half. We knew this would happen because the drainage procedure was only a temporary fix. Because the surgeon was satisfied with the results of the procedure and I was a good healthy candidate for the brain surgery, I was admitted to Ronald Reagan to have brain surgery to insert a small catheter into my brain on the right front just above my temple. A tube came out from the catheter, through a one inch diameter hole cut in my skull and then run along my skull just under my scalp. A computer assisted valve was planted in the tube and then down over my right ear and threaded down my neck and into my chest cavity fairly close to my stomach (not IN the stomach, but near it in the lower chest cavity). The Valve then drains the fluid automatically according to the computer which senses whether I'm standing vertical or lying down OR bending over. I'm 74 now and everything is still working as stated. No headaches, perfect balance and walking every day like I was 20 years old. The only thing that has changed is that I cannot half an MRI at all because of the stainless steel round plate that covers the hole in my skull. I also have to make sure I don't take any hits to my head on the right side that would damage the valve and computer. It took about six months to "tweak" the computer to remove the exact mount of drainage to be removed each day. That was done by the surgeon with a device that looked like a computer mouse. He would hold the "mouse" against my skull in the vicinity of the computer and changed the amount the computer valve would drain. It was sometimes be increased or decreased until we had the optimum setting to achieve the maximum stability and still not have headaches. It can be a fairly narrow band. If the valve drains too much, there is always a chance for a stroke and death. You need the best neuro-surgeon you can get for these procedures.

      This may not be what your doctor has in mind for you, but it very closely resembles what I went through.

      Good luck with your procedure. It sounds like you have a build up of fluid and you need to know that you have to be very patient as the results sometimes come very slowly and it can be frustrating. Sounds like your guy has his finger on the problem.

    • September 22, 2017 1:42 AM EDT
    • Good luck and God bless!

    • September 21, 2017 7:40 PM EDT
    • Oh man, I sure hope you get relief and then recovery.

      Yer bud,

      John

    • September 21, 2017 7:34 PM EDT
    • I hope this goes well!

    • September 21, 2017 7:17 PM EDT
    • Praying for the procedure to be successful..   

    • September 21, 2017 5:32 PM EDT
    • Good luck with the procedure...  Hope it works....

    • September 21, 2017 4:47 PM EDT
    • Good luck Devon , we will pray for you here. Hurry up and get well my friend !

    • September 21, 2017 3:34 PM EDT
    • RevDev,

      Best of luck with this procedure. I hope it gives you some relief. I'll be thinking of you.

    • September 21, 2017 3:21 PM EDT
    • Going in tomorrow for a large volume lumbar puncture (spinal tap). They are going to remove 15cc of spinal fluid to see if that will reduce the pressure in my head. This is a pretty routine treatment for my condition. If all goes well it should give me a few months relief of my symptoms. It is not a cure but its the most likely effective treatment at this point. We will probably then try a new medication that will keep me from producing to much again. But thats down the road. For now I just want so symptom relief. 

    • September 20, 2017 9:53 AM EDT
    • Hi Devon! And my parents are in town to visit and say hi, too - I took the liberty of figuring you wouldn't object to their prayers.

      And my little 50 person farm burg church knows there's a model train friend out there in Idaho who desires healing.

    • September 21, 2017 8:06 PM EDT
    • I miss seeing that railroad! Glad to hear they are both well.

    • September 21, 2017 7:07 AM EDT
    • Hopefully she is holding up well during the wait, and that you get this resolved soon.

       

      Chris

    • September 21, 2017 2:47 AM EDT
    • Greetings Ray,

      I am praying for you and your wife.  What you and she has gone through is pretty unfathomable.  Prayers for comfort to both of you...

    • September 21, 2017 2:10 AM EDT
    • Okay. Appreciate the update. Tell her hello and that there are people out here who care.

    • September 21, 2017 1:28 AM EDT
    • We're still stuck in a holding pattern, waiting for a room to open up at a psychiatric facility where she can receive treatment to develop an updated medication regimen for her. Yesterday I finally got to see her regular psychiatrist, and he agreed that at this point, that's the most appropriate course of action.

       

       

    • September 20, 2017 9:51 AM EDT
    • Hi Ray and Cris! How y'all doing today?

      Oh dear, Doug!

       

    • September 20, 2017 9:19 PM EDT
    • Yeah Kevin, going to be a good bit of dirt, and rocks.   I don't think the dirt will be an issue, since my source is directly across the road and he has stock pile.  The rock on the other hand may prove harder.  I'm set on natural rock.  I'll have to do some checking around before spring to find a source.  The dozer is almost ready.  I have all the new parts. Old parts are almost all cleaned and painted. Just have to put it back together and in.

       

      Here are the two  11 x 17 plans I'll be using to layout the lines for the walls.  First I'll use stakes and string to create the grid over the ground. then I'll transfer the design with spray paint. Then the fun of rock stacking starts.

       

      Robertsdale only-sht 1

      Robertsdale only-sht 2

    • September 19, 2017 7:59 PM EDT
    • Watched the latest show on Norways Fish Train, interesting how they use the containers and piggyback trailers compared to how we do it. Also 1 engineer only on board the locomotive, no fireman/conductor. Several Women engineers. Also computerized real time tracking of all the individual refer trailers, so they know if a refer unit gos out, or is not cooling properly they can stop the train and repair it . This train is used to quickly move fish from docks to distribution centers for world wide delivery within 48hrs of being caught